We are excited to invite you to participate in a new research study titled “Patient considerations for participation in registries, patient-relevant information and current practices.”
Why participate?
Patient registries are valuable sources of data for understanding the effects of medicines on Multiple Sclerosis (MS). Your participation will help us learn what aspects are important to people living with MS when deciding to join a registry and how registries can better serve their needs.
Who is conducting the study?
This study is being carried out by the University Medical Centre Groningen (UMCG) in the Netherlands, the Berlin Institute of Health (BIH) in Germany, the University of Lisbon (UL), and the European Multiple Sclerosis Platform (EMSP), under the umbrella of the More-EUROPA project.
What will participation involve?
Participation involves completing a couple of short questions in an online survey and taking part in a 1-hour online interview.
Benefits of participation:
- Contribute to improving the experience of People living with MS using registries.
- A €25 gift card as a token of our appreciation for your time.
Har du lyst til at deltage?
Denne undersøgelse foregår på engelsk. Hvis du ønsker at deltage, kan du udfylde formularen her.
Har du spørgsmål, kan du kontakte Fabian Windfuhr på f.a.windfuhr@umcg.nl.